Thursday, December 11, 2008

The Blessing of Brighton!

Wow, Blessings, so much gratitude and abundance.
Our lives are so full of good and wonderful moments this season!

One blessing we have with Cole is that he gets a nurse to come and "play" with him a couple times a month. His respite care nurses are amazing. Luz and Lydia... This gives me time to spend doing something special with Brighton.

Last week I picked Bright up from school and took him on a special, secret date. We went to the Irvine Spectrum and saw a double feature!! Disney's BOLT in 3-D (super cool!) and IMAX Madagascar 2 (Way Awesome)! (Direct quotes from Bright.) We had a really great night together.

Brighton is doing so well. Since April, when we were told that he has Autism with Sensory Processing challenges, we have begun parenting him very differently. He is a new kid. 90% of the time we are able to avoid the crazies. And when we can't avoid them, at least now we know what is causing them, and we are so much better equipped to handle them. Brighton is handling himself so much better.

There were 6 issues that I went to my pediatrician about.
1. Sensory...
Too loud! My drink is too cold! The light is burning my eyes!

2. Potty Training 5 years old and no closer now than we were 3 years ago.

3. Toes, digging so hard and obsessively that it bleeds, and he can't "snap out of " the trance. Fixated on the toes.

4. Transitions. Even if we are going from boring nothing to Disneyland. If I forget to " warn" him, he freaks out.

5. Aggressive Outbursts... normal sweet kid 90% of the time... then all of a sudden, crazy takes over his little body. It's like he can't handle his emotions.

6. Eating... There were seriously only five foods he would eat regularly.
Waffles with peanut butter and whip cream
Pirates booty
Peanut Butter Captain Crunch Cereal
Gummies
Celeste frozen microwave pepperoni pizza.
Everything else was... It's wet, yucky, there's stuff on it.
And no matter how hungry he would get, it did not matter. He just would not eat. It was like he physically could not get it down.

Now we realize there is just a short circuit in his brain. And we are learning how to re-route his thought processes sot hat he can accommodate regular life in his wiring... Life gets easier by the day!

He eats almost like any other kid now. Every once in a while he will still have to bye bye (spit out) a mouth full of food. But if you look at him in June and compare it to now, it is a million, trillion times better.

Learning what the problem is makes all the difference in the world.

2 comments:

Katie Anderson said...

Charise...holy moly you are amazing! Those kids NEEDED to be in your home...a place where they have a loving father and mother who would do anything for them. You are a great example to me of remembering the blessings amidst the turmoil. I'm so glad Cole's surgery went well. I'm so glad Brighton is doing better. And I'm so glad I get to be a bystander and watch how much joy you have in your life because it helps me to enjoy my kids that much more!

Marc and Shay said...

I 100% agree with Katie! YOu're awesome!!! thanks for being my friend!